5 Reasons I Smile

The ultimate goal of this blog is to spread awareness and show how beautiful life can be. We have four amazing daughters. Our youngest was born with Down syndrome. If just one person stops here and leaves with a different, better perspective about Down syndrome, then it is worth it. Regardless, I have 5 Reasons to Smile!



Friday, November 25, 2011

Happy Thanksgiving

Ohhhhh this is my favorite Holiday! I love all the food that comes with Thanksgiving and that everything seems to pause, so families can gather around the table and eat. It is also a time we reflect, out loud, about all the things we are thankful for.

Diondray was on duty, however I tell the girls we are thankful he has a job. REALLY THANKFUL. And we stick to our traditions and have Thanksgiving dinner and he will eat left overs today. :)

I am very thankful for the life I live and all the wonderful things that have come with it. We all have one, so embrace it, cherish it and live it!

Thanksgiving 2011




























Tucking Jaden into bed last night I said, "Today was a great day."
She replied, "Mom, you say that everyday."

That is true, we are blessed around here, it often feels like everyday is a great day...
and I am so thankful.

Friday, November 4, 2011

Speaking in sentences

My mom called today to tell me Kamryn said, "I want my mom. I want my mom."

OK, that is heart melting, in more ways than you know.

Because Kamryn is delayed with some of her development, we notice the small things. We see each step she takes to learn something new and realize the work required to develop each skill. After her diagnosis (and reading all the things she would not do, may not be able to do and would never do) I was left wondering if she would do anything. I felt like I was constantly on edge waiting for her to roll over, sit-up, crawl, stand,walk, etc. Every time she reached a milestone I would celebrate for only a minute and then keep my fingers crossed her development wouldn't end there. It may seem absurd, but when you are holding a new born and told they have Down syndrome, you can't wrap your mind around what that means. With my other girls I never thought twice about how they would develop or if they would develop. When I looked at Kamryn I ACTUALLY WONDERED if she was even going to grow.

Today, I am much less concerned about her reaching milestones and developing. I see her blossoming daily and I have realized, like all children (and people), she will move ahead at her pace and with love, encouragement and support she will be just fine.

She has recently started speaking in sentences and expressing her feelings, which is a huge step in speech and general development. When I put the head piece to her Halloween costume on, she kept saying, "to tight, to tight, take off!" While out trick or treating she said, "I'm scared" I paused at this and thought - How does she know to use that word to describe her feeling? Well Andrea, maybe because she is one smart cookie :)!

We have also heard:

"Hungry for Subway." Yes, this cracks me up :)

"Thirsty water please."

"Brynn did it!" Yes, she has started telling on her sisters! I told them this day would come!

"Throat hurts, Doctor."

Her vocabulary is growing and her speech is developing and she is talking in sentences!


Once a week Kamryn takes an adaptive
PE class. This helps her with gross motor skills
and gives us ideas to use with her at home.



She is always "going out!"


she sees a "bug!"



There is water pouring out of the cup...



The contagious smile!

Monday, October 31, 2011

Down Syndrome Awareness 31 for 21 October 31, 2011

Lately, I have been consciously working on not feeling guilty.

I am a working mom, with four children, I have to repeat that to myself at times. (All moms are working, I also work outside the home).

I had planned to post everyday for Down syndrome awareness month. That was my plan. I was excited about it. I thought committing to the challenge would force me to post everyday.

REALITY: By the end of the day, I have to prioritize what gets done and posting on my blog did not make the list. One day turned into two, then three. Then, I just avoided it altogether and hoped no one would notice. (I got a few emails asking where I was) :).

I don't feel guilty. A little disappointed, but not guilty. I wanted to participate in the 31 for 21 campaign to advocate for Kamryn and other children and adults with Down syndrome. But I do advocate, everyday-I had to repeat that to myself several times this month.

Enjoying, laughing. loving and living our life is clearly the strongest form of advocacy. And we do a lot of that! It has been a month full of smiles, joy, celebrations and just life...

Birthday...I am wiser. This was several celebrations. :)

Trip to the Pumpkin Patch.

Our Halloween party.

Soccer.
SIDE NOTE: My girls are defiantly growing up and it is obvious by the names of their teams: Brynn-The Purple Cup Cakes. She was not happy with this name, she preferred the Purple Tigers.
Naomi-Orange Tigers
Jaden-The Dominators

Swimming. (October has been hot!)

Bike ridding.

Enjoying life.


The dinosaur wanted to be Luigi tonight!









To scared to stand with the group.
There was a wolf in the pack.


Pumpkin Patch















Soccer Saturdays










Hot days in the fall





Her hair is soooo long!









This girl has her own style. And I LOVE
that about her.




On our way to the park.





On the way to school.





Show and tell something purple.


The days are full...it's happy chaos around here.